The diagnosis of brain injury must be made by a medical doctor, but too often that doctor has never heard the full story of TBI, either in that specific person or in general. Almost never have most those given the responsibility to diagnose TBI, listened fully to the survivor or heard what the family members and co-workers say about the immediate and long term consequences of this injury.
Thus, we have started the TBI Voices initiative. To launch it, we are bringing to support groups Lethan Candlish's performance of "Who Am I Again?". "Who Am I Again?" is a story teller's perspective on surviving coma, both in his voice and in the voice of those of his family, friends and others who shared his rehabilitation journey.
It is hoped that tbivoices.com will fill the void of the missing TBI story. Through the TBI Voices initiative, we will provide an internet archive of brain injury voices. The goal is to create a comprehensive and consistent treatment of the subjective aspects of TBI. Each story will include the voice of the survivor, those who knew the survivor before and after the injury, the context injury and the nature of the treatment and disability. If this archive can become a chorus of voices, it may influence the diagnosis and treatment of brain injury in a way that current research - that is based upon objective measurement of an injury that is exceedingly hard to measure and almost impossible to quantify - cannot.
All of the interviews that are part of TBI Voices are are loaded on YouTube at http://www.youtube.com/user/tbivoices Please follow us there.
TBI Voices is the creation of Attorney Gordon Johnson, who has dedicated his career to advocacy and education about brain injury. That has not only included representing TBI survivors in court for more than 20 years, but creating some of the web's most read materials on brain injury, including waiting.com, tbilaw.com and subtlebraininjury.com
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